Atypical moterhood

the stress of mothers caring for children with autism spectrum disorder

Abstract

The present study aimed to understand the stress in mothers who care for children with Autism Spectrum Disorder (ASD) and identify its possible causes. In order to understand the process of atypical motherhood, a popular term coined to refer to mothers caring for individuals with disabilities or rare diseases, and to outline this study, the following question was raised: “what are the possible causes of high levels of stress in mothers caring for children with ASD?”. Therefore, it was necessary to analyze their experiences and the connection between the daily challenges they face and the possible sources of resulting stress. In this context, motherhood was observed, through a literature review and the use of a comparative method, as an experience filled with challenges ranging from the burden of daily care, the diagnostic period, social prejudice, lack of family support, affective and social problems, among many other variables. Furthermore, these challenges, when combined with the individual characteristics of each mother and child, as well as their situational context, can result in high levels of stress, leading to physical and mental health issues, as well as emotional exhaustion. Based on this, it is concluded that mothers of children with ASD are exposed to experiences that contribute to stress in a way that affects their physical, mental, and emotional health. In light of this, it is proposed to create strategies or interventions, such as support groups and assistance centers that provide healthcare services and support for mothers, aiming to prevent the worsening of maternal stress and its reduction, thus benefiting both mothers and children.